Peter had a good day today, especially for us. Not only is he doing well with the ECMO at 70%, which means his own heart is doing 30% of the work, he was also wide awake for a whole hour during our visit! Eyes wide open and really looking at us. Betsy also got to wash his hair, change his diaper and wash him off a little. For the first time, we had the feeling that we had a real child. It looks like they want to slow down the transition off the ECMO, so he could be on it for a few more days.Betsy was able to talk briefly with one of the cardiologists. According to this doctor, their greatest concern is the possibility that Peter's pulmonary veins will not be able to function properly, i.e. not be able to take the oxygen from the lungs to the heart. That would be a severe handicap about which nothing could be done, except lots of medication. Peter is currently already receiving these medicines, but they remain hopeful that they will be able to wean him off those and that he will be able to breathe on his own. The doctors are no longer really concerned about his heart.
Guys,
ReplyDeleteHe is absolutely beautiful! Grats!
B
What a wonderful sweetie he is! Thanks for the lovely pictures.
ReplyDeleteAll of you are constantly in our prayers,
ceb
Oh, what a sweet, darling little boy! what an ordeal this is for you! we spent quite a lot of time at Children's ourselves and know how difficult it is to see your baby in intensive care and not to be able to take him home and to leave him there... it is heart wrenching for the mommy esp.! i am praying for little Peter and the strenghtening of his pul. veins! Praise God for this dear little life!
ReplyDelete-Kathleen Tschacher