Too bad we didn't have a camera handy at the right time, but Peter did spend a considerable time wide awake and without the side-effects of semi-sedation visible in his face--much to our enjoyment. In fact, up until we left (around 3pm), Peter had received no sedatives apart from the small doses he is still getting for his general discomfort; meaning: he has been behaving for the nurses.
The doctors remain very unhappy with the continuing chyle leak. After a decrease over the weekend, the tracheostomy on Monday seems to have set off another enormous increase. On Tuesday, he put out 1,100 ml and on Wednesday it was just shy of 900 ml, practically all out of his left tube. These are gigantic amounts for a little baby. But Dr. Moga, one of the surgeons treating Peter, told us today that he does not want to try any more surgeries on Peter because he is not convinced he would have any benefit from it. It is, in effect, a waiting game. The chyle leak will have to clear up all by itself and all the doctors are willing to do at this moment is managing his fluid levels. Peter has unfortunately not responded to any treatment and this means that he will have to remain hospitalized for several more months. All we can do is hope that some rest from any procedures will again create a downward trend in the output of chyle--and pray.
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Oh, what a long haul! We are praying for strength and peace for all, and healing for Peter. Please let us know if there is anything else we can do!
ReplyDeleteLove,
the Bruin's
We will stubbornly keep praying that Peter's leak would stop, much like the widow in the Bible begging the judge--only our judge has all power and love and wisdom, and is joyfully waiting for the perfect moment to stop Peter's leak with just a touch.
ReplyDeleteThe Van Heests