Hi everyone,
Good news! Today Peter graduated to the third floor "Intermediate Care" unit, or as Daniel calls it, the Getting Well Floor. His new room is several times the size of his intensive care room. It has a sofa, a bathroom, and other features that will make it more comfortable for us to spend a longer time each day together as a family. There is a playroom which sent Daniel into ecstasies. The atmosphere in the new unit is serene, a great departure from the bustle of the PICU. Peter will probably have to adjust to the quiet!
Peter is currently on the lowest ventilator setting (CPAP), which means he is taking all his own breaths with just a little pressure support. Soon he may be ready to go without the ventilator for part of the day, wearing what is called a "nose" over his trach. (I had imagined the "nose" as something out of a Mr. Potato Head set that attached to the trach, but it is actually just a sort of filter.) Also, Peter went down a notch on his methadone over the weekend.
Peter is getting better at sucking on his pacifier and has had some success drinking from a bottle. Now we are hoping he will really catch on quickly. If this does not happen the doctors may decide to insert a G-tube, which is a tube that runs directly into his stomach (not down through his nose). His long, agile little fingers are very adept at pulling out his NJ tube (nasal feeding tube). So our prayer requests remain the same: less vent, less drugs, more success bottle feeding!
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Got it: less vent, less drugs, more bottle sucking! We love specific prayer requests! I wonder what Peter's long, agile little fingers will be doing someday--certainly lots of puzzles with big brother Daniel helping!
ReplyDeleteLove and Prayers,
The Van Heests
I agree with Linda, it's so nice to know specifically what we can pray for Peter, but don't forget to keep us informed of what we can be praying for the two of you, and Daniel, as well!
ReplyDelete~The Rynders
Praise the Lord and Happy 3 Month Birthday to Peter! The Kroeses
ReplyDeleteYay! It is good to hear of Peter's continued good moves (and happy 3 months!), and your being able to be together more. Sorry we've been out of touch recently--the combination of Madeline's first cold+fever and having to begin the semester again put Mom BoylanFox's head in a tizzy. We pray for you every day, and hope God will grant us another occasion for a visit sometime soon!
ReplyDeleteKristina, Dave, and Madeline