Tuesday, June 16, 2009

Key Lime

It was less of a sad day for us today, though there is no news different from yesterday. We talked to Dr. Baker, the cardiologist, about the upcoming heart catheter that will be done on Thursday afternoon. He told us once again that the doctors have no treatment alternatives for Peter's ongoing chylothorax because they don't know why that condition exists. The heart catheter is a last resort: they hope to find a mechanical problem (blockage) in the pulmonary veins that would explain it. They could operate on that with a reasonable hope to take away the underlying cause for the chyle leak. But Dr. Baker warned us that a clear outcome is somewhat unlikely and on the other hand may confirm a deep fear: that Peter has pulmonary vein stenosis, a congenital and irreparable deformation of the pulmonary veins. We had a good talk with him about Peter's further treatment and were even able to educate him about fat-free breastmilk, a topic he took an apparent interest in.

It was also a Key lime green day, at least for Betsy. She got to hold Peter in a rocking chair and the nurse (Gaylene) remarked that the blanket on Peter matched Betsy's shirt: both were Key lime colored. To which Betsy was able to add, "Even my lunch yogurt was Key Lime Pie flavored." Thus, Gaylene decided that Key lime should be the theme of our blog for the day.

4 comments:

  1. Dear Betsy, Michel, Daniel, and Peter,
    We admit that not seeing a post to read for a day or two got us a bit nervous...but you take that rest whenever you can. You have our prayers, always, and with especial fervor now.
    Love, Kristina, Dave, and Madeline

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  2. Sir Ronald and Jolly JesterJune 17, 2009 at 4:16 PM

    Dear Peter and Mr. and Mrs. Peter,
    Today we obtained a sword from the Covenant Castle and learned from Una that the Lord goes before us in our battles. We also learned that tomorrow we will meet a dragon, and from the looks of it, you will be tackling one too! Rest in your sword of the covenant! We're eager to meet you, Peter.
    P.S. Una says hello!
    P.S. (again) Tell your Mama that we're behaving splendidly.

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  3. Betsy, although this is the first VBS in a very long time without you, your fingerprints are all over it. We will trust in the One who gives the sword of the covenant--He is altogether faithful, powerful and wise. We are lifting Peter up in prayer! The Van Heests

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  4. Hi - Maureen Dahl sent me your blog info. I am one of her clients who can relate (in a way) to your pain. Please know that there is someone else out there praying for your precious Peter. I am so thankful that you have continue to hold strongly to your faith during this difficult time. Peter is a beautiful boy and you are richly blessed!
    Rachel

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